Friday 11 March 2016

Mysterious condition makes blood seep from teenager’s eyes and ears


A 17-year-old girl, Marnie Harvey, is suffering from a horrific mystery condition which causes thick, stinging blood to seep from her eyes and ears. She says she can't really go out and has no friends anymore because she's "always in the house". The condition that has baffled doctors for three years is making her share her story in the hope of getting her life back.
Miss Harvey's ordeal began in 2013 when she woke up with blood spatters on her pillow.
Her terrified mother Catherine, 43, took her to the GP - but despite several tests, no cause could be found. She's seen eye specialists, gynaecologists, haematology experts, neurologists and paediatricians to try to find the cause.




"It burns and then if it covers the pupils of my eye I can't see," she tells Newsbeat.
The mystery condition also affects her ears, nose, gums, scalp, fingernails and tongue.
For the next two weeks her eyes continued to bleed every day. Marnie-Rae had multiple tests, saw more specialists who found she had a "weakened" immune system but nothing more.
Haemolacria is the medical term for tears of blood - but it is very rare. Causes can include injuries, clotting problems and tear gland disorders - but Marnie-Rae has been tested for this and she was cleared. The bleeding continued and the teenager says she's had to put her life on hold.
"I didn't manage to do my GCSEs and then I can't do college."
She says she lacks energy and constantly feels light-headed. Her limbs and bones often ache.
"People just stare and I can only walk so far without being sick. I was at the hospital the other day and people were trying to take pictures and saying 'urgh' about my face and stuff."
And recently the problem has worsened.
"The last 12 days it's been bleeding non-stop and everything's been bleeding at once.
"Normally it'll bleed for about five minutes then stop for an hour but it's been happening for half and hour and stopping for five minutes. I have to keep getting up in the night but I'm sick every day about five times."


"They thought it was going to be a blood disorder but now I've had an injection called Prostap 3 to 'stop my womb from working' and if it's that I'll have an operation because they'll look into endometriosis."
She was told there's a 60-70% chance the injection might stop her from being fertile in the future. "I'll be bothered about it but first I want to get this sorted."
Marnie-Rae has until mid-April to see if it's worked - but does she think it has?
"No, because the injection makes you go through menopause symptoms, I'm going through the symptoms like sweating and mood swings but I'm still bleeding."
Next she'll be referred to a skin specialist, but she doesn't think it's anything to do with her skin.
"When I'm due on [my period] that's when the bleeding gets worse. The gynaecologists say they'll carry on [testing]."

3 comments:

  1. hope she gets some treatment soon

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  2. she just have to learn how to manage it

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  3. i guess it can be frustrating

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